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PostPosted: Fri Nov 06, 2015 1:17 pm 
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Hi guys, bit of a essay below I realise. I've pulled this off of facebook its a friend of mines little sister I'm hoping there are some good guys on here that would help to make this little girls day. I'm sending her a card, what good deed have you done for the World today?

PLEASE READ & SHARE
So, this beauty is my little sister, Emily. She was born with a rare heart condition called hypoplastic left heart syndrome, this is where the left lower pumping chamber (left ventricle) of the heart does not develop properly. When she was a baby she had three open heart surgeries, leaving her with half a heart. Emily was healthy providing she took her medicine every day and didn't do competitive sports or highly active tasks.

Emily was recently rushed to hospital because she had a heart rate of 150bpm for 4 hours, then her heart was stopped and restarted in order to bring it back to normal. This happened a few more times and then we were told that Emily's heart is failing as her heart has been under a lot of stress due to a leak on her heart valve. She now has to have an all day operation on the 4th of December to repair the valve but they think her heart will be too week to respond. The risks of this operation is unknown as it has only ever been done once and this is a scary time for my family. Thank you to all the offers of love and support.

Whoever you are, wherever you are in the world, Emily would love to receive a card from you.. Emily Reynolds, ICU, Evelina children's Hospital, Westminster Bridge Road, London SE1 7EH

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PostPosted: Fri Nov 06, 2015 2:46 pm 
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I'll send a card.

Mods. Might be an idea to sticky this?

Hope to hear some good news on December 5th.

Jason.

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PostPosted: Fri Nov 06, 2015 4:14 pm 
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Thanks Jason! Yeah I will keep you informed

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PostPosted: Fri Nov 06, 2015 4:17 pm 
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I'll send one as well mate.

Chris

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PostPosted: Fri Nov 06, 2015 5:34 pm 
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Stickied

I cant imagine what the family are going through, hope the op is a success.

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PostPosted: Fri Nov 06, 2015 6:15 pm 
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Thanks Chris and thankyou Ross!

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PostPosted: Fri Nov 06, 2015 9:20 pm 
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ill do it aswell can't imagine going through that poor lass

you should get it up on FB and get it going viral

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PostPosted: Fri Nov 06, 2015 10:48 pm 
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I've already shared it on my wall will put it on a few pages in a couple days time.

Thanks mate

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PostPosted: Mon Nov 09, 2015 3:14 pm 
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Emily has been rushed into hospital again with a high heart rate but they were able to restart her heart. Come on guys show her some support please. thought there might have been more than that that would spend £1.50 on a card :eh:

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PostPosted: Mon Nov 09, 2015 9:24 pm 
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I'll send one too. Worst nightmare one of the kids being ill, hopefully she'll end up with a room full of them and it will make her feel a bit better.


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PostPosted: Mon Nov 09, 2015 10:05 pm 
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Have you considered getting the local radio station involved?
Heart here in Manchester did something similar a few months back for a lads birthday.
He ended up with thousands of them!

http://www.heart.co.uk/northwest/on-air ... r-william/

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PostPosted: Tue Nov 10, 2015 10:24 pm 
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hope you dont mind i shared it with my college and facebook

will hopefully be getting a card sorted tomorrow :)

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PostPosted: Wed Nov 11, 2015 9:12 am 
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Thanks Andy,

That's not a bad idea Jason!

And that's absolutely fine mate thank you!

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PostPosted: Fri Nov 27, 2015 8:36 pm 
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hay hows the little girl now and she recived many cards yet ? should have one from my gfs nursery and one from my ugly lot at college lol

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PostPosted: Mon Dec 07, 2015 1:56 pm 
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Any update?

I hope to be able to send another card.

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PostPosted: Mon Dec 07, 2015 2:10 pm 
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Hi Jason was going to post an update today. She had an op Thursday and went well but the big one is today

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PostPosted: Mon Dec 07, 2015 3:37 pm 
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Fingers crossed for her and positive thoughts for the family.

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PostPosted: Thu Dec 10, 2015 4:11 pm 
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Was informed last night the operation was delayed till Monday because of some emergency babies that came in. Also she has received over 100 cards and they are still coming in so thankyou to everyone who has sent one and keep sending them!

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PostPosted: Thu Dec 10, 2015 4:13 pm 
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This is after her op on Friday Image

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PostPosted: Fri Dec 11, 2015 3:06 pm 
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ahh thats really good glad she is getting lots of cards hopefully she has a quick recovery :)

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PostPosted: Tue Dec 15, 2015 11:45 am 
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Emily update.
She's now in intensive care. Her valve could not be repaired so was replaced and a pacemaker fitted. Not a cure unfortunately but the best we could hope for now.

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PostPosted: Tue Feb 02, 2016 12:00 am 
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How is she doing?

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PostPosted: Tue Feb 02, 2016 1:42 pm 
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she has had some up's and downs but currently out of hospital

Because Emily's condition is unique it was difficult for doctors to set her pacemaker at the right rate. It should not have dipped below 60 beats per minute but dropped to below 40. Her INR levels should be between 2-3 but have spiked at 9 which means that her blood is so thinned the slightest knock could cause internal bleeding. She also had a breathing problem that could have been caused by numerous reasons connected to her surgery.
She got moved to the Evalina Children's hospital in London because of this but was able to go home on 7th.

She's had to go back to hospital for blood tests but nurses struggled to find a vein that would stand up to their needles. they were able to get it done eventually though
She's had to be taking a walk to the shop each day to stop fluid collecting on her lungs. shes not back at school until the end of Feb but her Warfarin levels are good and the breathing problem has cleared up.

Thanks for asking Jason

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PostPosted: Tue Feb 02, 2016 1:45 pm 
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One very brave little girl thats still able to manage a smile

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PostPosted: Tue Feb 02, 2016 1:48 pm 
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Not a problem.

I hope her and her family are feeling that there are people wishing her well and sending good vibes..

I'm not a religious person, so don't want to say pray for her.. Also sounds morbid to me..

Anyway.
Hope she's feeling better.
:)

Edit.
Just seen the photo.
Nice she can still smile after going through all of that.

Jason.

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